Wednesday, December 21, 2011

Days 50-54

These pictures were taken last week and I had full intentions of using them for our Christmas cards, but time got away from me and no Christmas cards this year...again!






Day 50: December 17, 2011- Walker is off his blood pressure medicine completely and his urine output is looking good. Hopefully he can keep it up. His fentanyl was lowered to 3 mcg, we started at 5 after surgery. Slowly but surely. Today he was a little more swollen compared to yesterday, but he's still the sweetest thing!
Starting to be more active. Holding Mommy's hand. His hands are identical to R's. Even the nail beds.


Day 51: December 18, 2011- Walker was so alert today. When we arrived his eyes were wide open and I got some really great pictures. His fentanyl, pain medicine, is at 2 mcg. Pretty soon he will be off! They gave him Lasix to help with the swelling and his urine output is really good. He's still pretty swollen but he looks better. 1 antibiotic is going and they will assess tomorrow when they want to stop or start a new one.
"Mommy! You're here!"

"No big deal, I'm Mr. Cool!"

"You're going to sing a song?"

"Do I like Twinkle, Twinkle?"

"Oh yeah, I love this song"

"Twinkle, Twinkle, again I demand!"

A really nice nurse secretary came by and asked if she could make Walker a sign. So happy!


Day 52: December 19, 2011- Walker was so cute tonight. He was showing us that not only has he grown but so has his little tongue! He was sticking it out and showing us. He still loves his fingers and I'm sure he can't wait to get a paci. His fentanyl was lowered to 1 mcg and hydro cortisone was discontinued. The bacteria that was found in Walker's belly was serratia. I googled it and found out that it could be deadly.

When we arrived there was a goodie bag to Walker and Mommy. Inside was a crocheted pair of booties and beanie. Can't wait to put those on him! A stocking, beanie baby, Bible, a charm in the shape of a baby boy with his birthstone in the middle, and a heart. All this was donated by the W.E.L.C.O.M.E Baby Ministry from First Baptist Church Pearland. W.E.L.C.O.M.E. stands for = Welcoming Every Little Child is Our Ministry's Endeavor. On the note in the bag it states, "W.E.L.C.O.M.E. was founded as a direct result of one mom's NICU experience with the loss of premature twins and later, a premature survivor."

They are great people in this big world. Some that are closer than we think.

Thank you FBCP! And Nurse Stacie from the previous hospital, whom I also went to high school with, has been such an amazing friend. I think Walker has won her heart! She arranged for us to get this care package and also has bought Walker a little something.

Today is your Aunt Megan's 28th birthday. I know she is your angel and is always with you. She gives you strength when you need it and comforts you when Mommy and Daddy aren't there. If she were here today, she would love you probably as much as Mommy does. She was an amazing friend and an overall great person. I've never seen anyone fight like her, well, until you.

Day 53: December 20, 2011- Walker had visitors tonight. Aunt Julie and Uncle Tim stopped by to see our Little Bird! Of course, Walker was sleeping. He started waking up just as they left. He's such a funny baby!

Today we had poop! That is such good news! He had poop in his colostomy bag, which means things are moving and working properly.

Walker's arterial line was removed today as well! That means that they don't need to monitor his blood pressure constantly. Little milestones!

They were also able to lower his vent settings. Pressures are 30 over 6. I have complete faith that with the swelling going down that he will be on CPAP in no time!

Walker weighed 4 pounds and half an ounce the day before yesterday, with Lasix, he was able to pee out most of the fluids and weighs 3 pounds 8 ounces.




Acting like a funny bunny!

Stretching!



Smiling at Mommy and Daddy!


Day 54: December 21, 2011-Walker had a good day today. No changes at all. We LOVE his Nurse, Courtney. He's a little flirt and when he hears her voice, he smiles!
Walker's little Santa hat that was a donation! 
I forgot to add this tidbit, the other day I posted this link: http://www.texaschildrens.org/parents/patientgreeting/default.aspx

You can write a little note to Walker and it's sent to his bed side. He had 6 letters today! They were all so sweet and made me teary eyed. He is such a loved little boy and we can't wait to share him with all of you!

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